Une approche de méthodes mixtes pour identifier les stéréotypes associés aux aides techniques utilisées en réadaptation de la dégénérescence maculaire liée à l'âge


Walter Wittich

Centre de recherche interdisciplinaire en réadaptation du Montréal métropolitain (CRIR)


Domaine : Vieillissement

Programme : Recherches sur la dégénérescence maculaire liée à l'âge (Programme DMLA)

Concours 2016-2017

The Quebec population is getting older and thus the prevalence of age-related diseases is increasing. Age-related macular degeneration (AMD) is a condition which results in the loss of central vision required for reading and identifying faces. Low vision rehabilitation is one of the main tools to maintain and even regain some visual function in individuals with AMD, and crucially includes the use of assistive technology devices (ATDs). These devices, which include magnifiers and white identification canes, may be eventually abandoned or rejected outright by the individual because of the stereotypes associated with their use.
These ATDs are commonly perceived as representing disability and vulnerability, and research has shown that stereotyping and stigma may have a significant impact on adoption and abandonment of ATDs.
Quebec has several ATD programs that facilitate the adoption of these devices at no expense to the client. The cost of these programs is approaching $3 million annually and is rising, since the primary consumers of these services are older Quebecers. However, the rate of device abandonment has been estimated as between 30 and 70%. To be fiscally responsible, we need to better identify who is not ready to use ATDs and to educate them to make them "rehabilitation ready".
Our immediate goal with this study is to evaluate how older individuals with a diagnosis of AMD respond to assistive technology devices, both voluntarily and involuntarily. This project will lay the foundation for a longer-term program, in which these measures will be tested to see if they can predict who would require additional education to improve their rehabilitation readiness.