L'intégration des perspectives des patients aux niveaux des soins et de la recherche en transplantation d'organes

 

Marie-Chantal Fortin

Centre de recherche du Centre hospitalier de l'Université de Montréal

 

Domaine : services de santé

Programme chercheurs-boursiers cliniciens - Junior 2

Concours 2015-2016

Organ donation and transplantation are associated with many ethical issues. Patients' perspectives on these issues could enlighten these ethical debates and eventually improve the clinical practices. Patients have an expertise on their disease. To take into account this expertise could improve clinical care and the patients' satisfaction. Patient engagement is also important in the field of medical research because it is a way to conduct research projects that are really relevant for patients. My research program looks at patients' perspectives in the clinical care and in the research on organ donation and transplantation.

The first project aims to describe the patients' perspectives on their priorities for their post renal transplantation follow-up care. This project will contribute to the development of clinical interventions in order to decrease the cardiovascular mortality after renal transplantation. The second project aims to engage patients in order to determine the research priorities within the Canadian National Transplant Research Program and to make patients participate in all stages of research. The third project aims to assess the feasibility of a new type of living organ donation in renal transplantation, i.e. the recruitment of compatible pair in exchange programs.

Patient engagement is part of these three projects. The results of these research project could improve clinical care to transplanted patients, facilitate the access to a living kidney transplantation and set the agenda for research projects that are relevant for patients.