Évaluation d'un outil d'aide à la prise de décision partagée à propos des objectifs de soins destiné à des patients âgés et frêles admis dans une unité de soins intensifs

 

Ariane Plaisance

Centre de recherche du CHAU Hôtel-Dieu de Lévis

 

Domaine : vieillissement

Programme : Formation de doctorat

Concours 2017-2018

Partenaire:

Unité SOUTIEN du Québec (Stratégie de recherche axée sur le patient)

Most Québécois want to die at home avoiding life support. But recent studies show more frail elderly are being put on life support in their final days and are dying in hospital. Those who survive struggle with recovering. Decision aids help professionals discuss with their patients about the risks and benefits of treatment options and about their personal values and preferences. Although there exist various decision aids about end-of-life treatment options, these are not widely used in hospitals across the province. Lack of adaptation to local context and culture are among the reasons these aids are not used widely.

Previously, we worked with patients and health professionals to create a decision aid that can be adapted to the local context of different settings. This decision aid is freely available at www.wikidecision.org. We now need to train clinicians to use our decision aid regularly. In this project, we will develop and deliver a training program to teach clinicians how to use the decision aid we created with frail elderly patients and their family members. We will then evaluate the impact of our training on the quality of patient's decisions by verifying if patients are making decisions that respect their values. We will also explore how our novel decision aid and training could be exported elsewhere in the province of Quebec.