Engagement des patients dans la recherche organisationnelle en santé : Représentativité des préférences quant à la gestion des troubles cardiovasculaires en première ligne


Claudio Del Grande

Centre de recherche du Centre hospitalier de l'Université de Montréal


Domaine : services de santé

Programme : Formation de doctorat

Concours 2017-2018


Unité SOUTIEN du Québec (Stratégie de recherche axée sur le patient)

Governments and health research funding agencies in many countries now view the active involvement of patients in every step of the scientific process as a critical priority, recognizing that they bring unique and precious perspectives that could improve the relevance and applicability of knowledge. Unfortunately, only a small number of patients are currently closely involved in research projects, and those selected often have special skills and/or experiences (academic training, retired health professionals, rare lived experiences, etc.). It seems likely that their points of view could differ from those of other patients which are also targeted by the research subject but remain uninvolved.

This project aims to study the preferences of Quebec patients suffering from a cardiovascular health problem in terms of their favored approach for prevention, monitoring and treatment of their condition in the primary care setting, with a focus on how these preferences vary from one person to another (representativeness). Rigorous methods (both qualitative and quantitative) will be used to openly involve a wide range of patients, notably online. The findings will attest to the diversity of patient preferences on this important topic, and the factors that are associated with them. This could result in the improvement of current practices to manage cardiovascular problems in primary care, in order to better meet the needs and interests of patients. The methods of patient involvement developed in this study could also be used systematically in the future to assist in the identification and prioritization of patient preferences in other areas of health care and for other health conditions.