Élaboration d'une stratégie de dissémination des connaissances sur les cancers familiaux dans le contexte des soins palliatifs fondée sur une analyse éthico-légale des points de vue des intervenants et des familles

 

Michel Dorval

Centre de recherche du Centre hospitalier universitaire de Québec - Hôpital du Saint-Sacrement

 

Domaine : cancer

Recherches sur le cancer

Concours 2015-2016

This project will help palliative care professionals to address the needs and concerns of dying patients and their relatives about the issues surrounding their family history of cancer and the possibility of inheritance of the disease, within an appropriate ethical and legal framework. This will be done through a research agenda comprised of three interrelated activities aiming to 1) identify priority issues related to family history of cancer among palliative care providers' practice, and perceived barriers and facilitators on how to address them ethically with patients and their family, 2) identify the needs and concerns of dying patients' relatives with respect to their family history of cancer, and 3) identify legal and ethical guidelines applicable to the communication of family history of cancer of palliative care patients to their  family members.

To ensure wider accessibility of the best information for health care providers having to deal with familial cancer history issues in the palliative care setting, there will be four deliverables from this project: 1) a toolbox dedicated to health care professionals, 2) a symposium in the annual "Journée Scientifique Michel-Sarrazin", 3) a Clinical Advisory Committee whose mandate will be to validate the toolbox and propose strategies for knowledge dissemination to various palliative care settings, and 4) continuing education activities on the role of family history in the development of certain cancers. Identification of applicable legal and ethical frameworks will delineate the possible actions for the palliative care team and identify promising avenues for reforms. The diversity and the complementarity of the team will allow the involvement of all settings concerned (i.e. hospital/hospice/home care settings, French/English, urban/regional).