Conception de plateformes pour les systèmes de santé apprenants : le patient au coeur de sa santé

 

Jean-François Ethier

Université de Sherbrooke

 

Domaine : santé des populations

Programme Chercheurs-boursiers cliniciens - Junior 1

Concours 2018-2019

Everyday, during each visit with a family physician or at the hospital, data is entered in electronic medical records. Health data can also be found in research databases (including biobanks) and even on personal devices like smartphones or exercise monitors. This data is extremely valuable to help with medical research and to help the clinical teams to provide the best care possible with the help of decision support systems.

Learning health systems are being developed to enable this vision and maximise the value of existing health data to improve the care of everyone. Obviously, before any data usage, proper ethical approvals, consents and security clearances must be obtained from the appropirate authorities.

Three projets will enable us to evaluate in a real-world seeting our approach of learning healht platforms:

1) The Plateforme apprenante pour la recherche en santé et services sociaux (PARS3) project is developed as part of the Quebec SPOR Support Unit. It aims at linking primary care clinic across the provinces to enable reflective practice (audit and feedback) as well as real-wolrd clinical trials in primary care.

2) The e-PIIRAMIDE project is supported by both the Université de Sherbrooke and the CIUSSS de l'Estrie - CHUS. It will enable, within the Eastern-Township region, linkage of very diverse data going from primary care to CHUS data and from research databases to biobanks. Citizens will even be able to contribute personal data to the project (e.g. GPS data during exercise periods).

3) Finally, we will develop a tool to facilitate the analysis of patient trajectories within the health system and to identify the ideal sequence of care associated with best outcomes for the patients.